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Nirvaan, who was born with a curved spine, was diagnosed with SMA Type-2 in January 2023 following which his parents Sarang and Adithi Menon started crowdfunding accounts to gather funds for his treatment.

Parents shot closer to procuring world's costliest drug for son; ₹11 cr deposited anonymously

Nirvaan, who was born with a curved spine, was diagnosed with SMA Type-2 in January 2023 following which his parents Sarang and Adithi Menon started crowdfunding accounts to gather funds for his treatment.

A mystery person, reportedly based in the USA, donated ₹11 crores for the treatment of a 15-month-old toddler suffering from Spinal Muscular Atrophy (SMA), a rare neuromuscular disease.&nbsp;
Nirvaan, who was born with a curved spine, was diagnosed with SMA Type-2 in January 2023 following which his parents Sarang and Adithi Menon, based out of Mumbai, started crowdfunding accounts to gather funds for his treatment.
A one-time drug called Zolgensma, manufactured by pharmaceutical company Novartis is required to treat the rare disease, which, if left untreated can cause eventual loss of movement in limbs while also shortening the patient's lifespan. Zolgensma, according to medical experts, can only be administered before the age of 2 to stop the disease from developing further.&nbsp; Zolgensma costs ₹17.5 crore and is delivered to India nearly 20 days after an order is placed. Sarang, a merchant navy officer and Adithi, a software engineer started two crowdfunding accounts soon after receiving their son's diagnosis on January 7, 2023.&nbsp; Till February 19, 2023, the couple had received approximately ₹5.5 crores through almost 50,000 donors. One day later, Sarang Menon announced on Facebook that an anonymous person had donated $1.4 million or ₹11 crores to one of their crowdfunding account.&nbsp; 'We want to share a piece of good news with you all - we have received a significant donation of $1.4 million from an anonymous donor. Their generosity has brought us closer to our goal of raising the funds needed for Nirvaan&rsquo;s treatment. It is heartwarming to know that there are still angels in the world who selflessly come forward to help others in need,' read the post on the child's Facebook page <a href="https://www.facebook.com/profile.php?id=100089183026584">Nirvaan_Fights_SMA</a>.&nbsp;
Also Watch: <a href="https://www.editorji.com/world-news/trending-12-year-old-boy-2-men-rescued-after-over-260-hours-in-quake-hit-turkey-1676630784110">Trending: 12-year-old boy, 2 men rescued after over 260 hours in quake-hit Turkey</a>
According to news organisation Onmanaroma, the anonymous donor spoke to crowdfunding organisation and said, 'When I came to know of the child's plight through the media, I felt like I should chip in. I&rsquo;m donating the money not for fame. Even the child's parents should not know my name. The life of the child is important, not my name.'&nbsp; The little boy's father told The Indian Express, 'Ever since we opened the crowdfunding accounts, I used to check them daily. By February 19, we had received around Rs 5.5 crore. On February 20, I saw a sudden and huge rise in the amount. I checked with Milaap operators if it was a technical glitch but they told me that someone had, in fact, donated that amount. We were ecstatic.'&nbsp; Menon immediately, reports IE, reached out to Milaap to thank the donor personally where he learnt that the person had requested complete and total anonymity.&nbsp; The Menons updated the Facebook page saying that they have initiated talks of procuring the medicine for Nirvaan at the earliest and asked their followers to keep the little boy in their prayers.&nbsp;

Aditya Sharma, a resident of Rajasthan, was handed his food delivery by a gig workers who was making the deliveries on his bicycle worker. Curious, Sharma asked more about him.  Durga Meena told Sharma that he was working as a gig worker for Zomato after losing his job as a teacher. Meena who holds a degree in BCom was teaching for 12-years when he lost his job due to the Covid-19 pandemic layoffs. Making the rounds on his bicycle, Meena hardly has any time to rest. He earns around Rs 10,000 rupees a month.  
When Sharma offered Meena help, the latter said he needs just enough for the down payment and world return all the money.  
Sharma appealed to the Twitter community to help raise funds for a motorbike for meena which will ease his work. The Twitter community came through for Meena. Within 24-hours enough money had been raised for him to buy a bike.  

In under 24-hours, Twitter crowd funds bike for Zomato gig worker 

Durga Meena started working as a delivery person for Zomato after he lost is job as a teacher

Aditya Sharma, a resident of Rajasthan, was handed his food delivery by a gig workers who was making the deliveries on his&nbsp;bicycle. Curious, Sharma asked more about him. &nbsp; Durga Meena told Sharma that he was working as a gig worker for Zomato after losing his job as a teacher. Meena who holds a degree in BCom was teaching for 12-years when he lost his job due to the Covid-19 pandemic layoffs. Making the rounds on his bicycle, Meena hardly has any time to rest. He earns around Rs 10,000 rupees a month. &nbsp;
When Sharma&nbsp;offered Meena help, the latter said he needs just enough for the down payment and world return all the money. &nbsp;
Sharma appealed to the Twitter community to help raise funds for a motorbike for Meena which will ease his work. The Twitter community came through for him. Within 24-hours enough money had been raised for him to buy a bike. &nbsp;
&nbsp;

Durga Meena&nbsp;started working as a delivery person for Zomato&nbsp;after he lost is job as a teacher

Aditya Sharma, a resident of Rajasthan, was handed his food delivery by a gig workers who was making the deliveries on his&nbsp;bicycle. Curious, Sharma asked more about him. &nbsp; Durga Meena told Sharma that he was working as a gig worker for Zomato after losing his job as a teacher. Meena who holds a degree in BCom was teaching for 12-years when he lost his job due to the Covid-19 pandemic layoffs. Making the rounds on his bicycle, Meena hardly has any time to rest. He earns around Rs 10,000 rupees a month. &nbsp;
When Sharma&nbsp;offered Meena help, the latter said he needs just enough for the down payment and world return all the money. &nbsp;
Sharma appealed to the Twitter community to help raise funds for a motorbike for Meena which will ease his work. The Twitter community came through for him. Within 24-hours enough money had been raised for him to buy a bike. &nbsp;
Also watch:&nbsp;<a href="https://www.editorji.com/world-news/jair-bolsonaro-faces-heat-why-brazil-ordered-viagra-pills-for-its-military-1649839850229" target="_blank">Jair Bolsonaro faces heat: why Brazil ordered Viagra pills for its military</a>

In a display of human kindness, ₹18 crore was raised in Kerala through crowdfunding in seven days for an 18-month-old child suffering from a rare genetic disorder called spinal muscular atrophy.
Mohammed, son of P K Rafeeq and Mariyumma, requires a dose of Zolgensma, which is considered as one of the most expensive drug in the world.
The treatment committee on Monday informed the public that over ₹18 crore reached the bank accounts opened for the donations and asked the people not to deposit any more.
The treatment committee, headed by MLA M Vijin, had a week ago appealed to the public to crowdfund for the treatment of Mohammed.
The campaign was taken over by social media resulting in raising the amount within seven days from across the world.

Kerala: People raise ₹18 cr in a week for treatment of 18-month-old boy

Goodness in God's Own Country:&nbsp;People raise ₹18 cr in a week for treatment of an 18-month-old child in a week in Kerala

Kerala: People raise ₹18 cr in a week for treatment of child

In a display of human kindness, ₹18 crore was raised in Kerala through crowdfunding in seven days for an 18-month-old child suffering from a rare genetic disorder called spinal muscular atrophy.
Mohammed, son of P K Rafeeq and Mariyumma, requires a dose of Zolgensma, which is considered as one of the most expensive drug in the world.
The treatment committee on Monday informed the public that over ₹18 crore reached the bank accounts opened for the donations and asked the people not to deposit any more.
The treatment committee, headed by MLA M Vijin, had a week ago appealed to the public to crowdfund for the treatment of Mohammed.
The campaign was taken over by social media resulting in raising the amount within seven days from across the world.

18-month-old Mohammed&nbsp;is suffering from a rare genetic disorder called spinal muscular atrophy, needs the most expensive drug in the world

Thousands of people came together online to save the life of a three-year-old Hyderabad boy, Ayaansh Gupta who was suffering from a rare spinal muscular atrophy (SMA) and required an injection that cost Rs 16 crore for his gene therapy treatment.
62,450 people contributed ₹ 14.84 crore through crowd-funding and the boy finally received the world's most expensive drug Zolgensma on Wednesday at Hyderabad&rsquo;s Rainbow Hospital.
The boy&rsquo;s parents were able to raise most of the money for his treatment through the crowd-funding platform ImpactGuru in around four months.
His father expressed gratitude to all the donors and ImpactGuru who gave Ayaansh a new lease of life.

How people helped a Hyderabad boy get world's costliest injection

Thousands of people came together online to save the life of a three-year-old Hyderabad boy, Ayaansh Gupta who was suffering from a rare spinal muscular atrophy (SMA) and required an injection that cost Rs 16 crore for his gene therapy treatment.
62,450 people contributed ₹ 14.84 crore through crowd-funding and the boy finally received the world's most expensive drug Zolgensma on Wednesday at Hyderabad&rsquo;s Rainbow Hospital.
The boy&rsquo;s parents were able to raise most of the money for his treatment through the crowd-funding platform ImpactGuru in around four months.
His father expressed gratitude to all the donors and ImpactGuru who gave Ayaansh a new lease of life.

crowd funding

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