5-month-old needs most expensive drug, people donate 16 crore

Updated : May 08, 2021 09:38
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Editorji News Desk

Miracles do happen. Parents of 5-month-old Dhairya had lost all hopes of saving their child after they were told the cost of treatment.

The child, who was diagnosed with a rare genetic disorder called Spinal Muscular Atrophy Type I, needed a drug called 'Zolgensma' which costs ₹ 16 crore for one dose and is labelled as the world's most expensive drug.

But the unimaginable has happened. With the generosity of over 2 lakh people, there is hope that Dhairya will live. The parents have raised 16 crores in small donations from over 2.6 lakh people in just 42 days hanks to the crowdfunding platform ImpactGuru, NDTV has reported.

Doctors at Mumbai's PD Hinduja Hospital, who are treating Dhairya, said, "The disease is found in one child out of 8-10,000 children. If not treated in time, there is a great risk to the life of the child."

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