Highlights

  • Haryana offers financial aid for rare diseases
  • Haryana cabinet approves new scheme
  • Monthly financial help for individuals

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Haryana to provide financial aid to those suffering from rare diseases

The National Policy for Rare Diseases 2021 identifies 55 rare diseases, causing undue financial strain and societal impact.

Haryana to provide financial aid to those suffering from rare diseases

Haryana Cabinet met under the Chairmanship of Chief Minister Manohar Lal, has approved a pioneering scheme offering monthly financial assistance to persons suffering from rare diseases.

The scheme, "Financial Assistance to Persons Suffering from Rare Diseases," comes as a response to the increasing prevalence of rare diseases affecting families and communities across Haryana.

The National Policy for Rare Diseases 2021 identifies 55 rare diseases, causing undue financial strain and societal impact. With an estimated 1000 patients currently suffering from these rare diseases in Haryana, the government aims to alleviate the economic burden faced by affected individuals and their families.

This compassionate initiative was announced by Chief Minister on May 11 2023, during the inaugural function at Civil Hospital, Yamuna Nagar.

Under this scheme, individuals suffering from rare diseases, meeting the eligibility criteria, will receive monthly financial assistance of Rs. 2,750 per month. The financial assistance provided under this scheme will be in addition to the benefit being availed under any other social security pension scheme by the applicant.


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