5-year-old suffers from a rare disease without a name

Charlie Parkes, a five-year old boy from Northamptonshire, suffers from a condition which is so rare that it does not even have a name. He's among 6,000 children born in the UK with'SWAN - Syndrome Without A Name'. Spending the first two years of his life in hospital, he now has anxiety, bowel syndrome, allergies and sensory processing issues. he has now learnt how to walk and even hold a pencil!